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Hi Casey! I saw you on NBC Nightly News. I watched it with my parents. I just wanted to let you know I thought it was great and to keep up everything you are doing.

READ CASEY'S RESPONSE

Thank you so much!  It was so exciting to be on NBC Nightly News with Lester Holt and I hope it impacted everyone who watched it.  Thank you again 🙂

 

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Hi! I think your website is great. I had a question that I’m hoping you can give me some advice on. I have to get a blood test soon. I’m real scared and nervous since I have never had to have one. I know you have lots of blood tests. Do you have any tips or advice to help me get through it? Thanks!

READ CASEY'S RESPONSE

Hi!  Thanks so much for your question…it’s a good one!  Yes, I do get blood tests a lot. Don’t be nervous.  It seems a little scary, but honestly it isn’t.  It is only a little pinch and you don’t feel it.  If you don’t like blood or needles, I recommend that you just look away the entire time so you don’t have to look at it.  What I do to help me is to hold someone’s hand and squeeze it when they put the needle in.  Just don’t think about it while they are doing it and before you know it, it will be over.  Also, sometimes it helps me to have a some juice and a snack after they take my blood. Good luck!  🙂

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I am a 16 year-old girl and I think your website is amazing. You’re so brave! Last year, my mom was diagnosed with breast cancer (she’s better now) and her mom, my grandma, also had brain cancer. My mom was tested for that BRCA gene, you know the one Angelina Jolie has, but she was negative. I wonder if she knows about the p53 gene. Do you think I should tell her about it? Thanks!

READ CASEY'S RESPONSE

Hi! I’m so glad you think the website is amazing. I worked really hard on it and think the information is so important for our generation to know.

First of all, I’m glad your Mom is better. Sit down with your Mom and show her the website, especially the family tree. There are many hereditary cancer genes, besides BRCA and p53, so the best thing would be for your Mom to talk to her doctor and/or genetic counselor and get more information. Good luck and let me know how it goes.

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I love your website and all that you are doing. How can I continue to support your amazing platform?

READ CASEY'S RESPONSE

Thank you!  I am very proud of the work we have done and the support we have received. Our G2 Community is the future and we need to continue to raise awareness on the importance of knowing your family genetics and health history.  It is our voice that represents the G2 community!  In the near future, there will be more ways for everyone to be involved. Stay tuned!

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I read about your dancing in your blog. That’s amazing. How old were you when you first started dancing? By the way, cool website ☺

READ CASEY'S RESPONSE

Thank you so much! I was 12-years-old when I started taking classes. Dance is such a healthy sport and it’s so important to stay active and fit. Glad you like the website! Thank you!

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I think what you’re doing is great. I would be scared to know what you know, but I also think it’s important to know. I guess that makes me an “I want to knower.” I am going to tell my parents about your website because we have disease in our family. Keep up the good work!

READ CASEY'S RESPONSE

Thank you so much! It’s true. It is scary, but as I said, it’s scarier not knowing. I want to change the world and try to make everyone have the opportunity to live as long and healthy as possible. It’s really important to know your family history. Glad you like Genome Generation!

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I would love to get tested to see if I or my daughter carried this gene, but isn’t it very expensive to get tested?

READ CASEY'S RESPONSE

Thank you for your question.

I am not a doctor so I can’t give medical advice, but if you are interested in getting tested there are several ways you can go about it.
You may talk to your doctor or genetic counselor and see what options you have.  There are blood tests and/or gene sequencing available and although it is costly, the price is going down.

There are also companies that you can request an “at-home” test.  One of them, which we have talked to personally, is Color Genomics…check out www.getcolor.com.  Here you are able to order a saliva kit which costs $249. This kit tests for 30 cancer genes that are associated with breast and ovarian cancer (among other cancers).

I appreciate you wanting to be so proactive in your health.

Good luck and let me know how it goes!

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